About my hearing loss

I met a girl called Beth who inspired me to write a blog to help people to understand my hearing loss. I find it very difficult to talk to people about this and make it out to be all fine and dandy however I am profoundly deaf. (This means no hearing) My deafness started 18 months ago when I had a hearing test and was found to have a mild hearing loss. Since then it has been deteriorating rapidly. We don't know why this has been happening, but looking back, I think I have been deaf for a while longer. Being deaf came as quite a shock to me and has taken some getting used to but meeting other hard of hearing people has made me feel more ‘normal’. Without my friends and family, I don’t know how I would have got through this. I went to a place called The Ear Foundation to look at a new device called a Cochlear Implant that might help me hear. Currently I wear 2 hearing aids that I call bricks.

Monday, 24 June 2013

Maybe there's a cause?

On 12th June I went to the Leicester Royal Infirmary for an appointment with Doctor Isobel Fraine a genetic counsellor. I went there to try and find the cause of my deafness because I am a mystery to the doctors! :) When I went, she was rambling on about some diseases and genetics and asking basic questions. Then she thought I might have auto-immune disease related to my coeliac disease (Coeliac is where you can't eat gluten, wheat and barley). I was quite relieved when she said this because I was quite intrigued to see why I was deaf. However, we don't know if this is the cause but at least we are getting somewhere and I have been referred to Nottingham for the cochlear implant.
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